Previous precedent-setting cases
Although the Hippocratic Oath contained no mention of patient desires for medical treatment, the goal of medicine has always been to provide treatment in the best interests of the patient, and it was the physician who was responsible for the medical welfare of the patient. As autonomy developed in the Western world and values shifted toward personal responsibility and individuality, the concept of self-determination in medical decision-making became more important to society. Unethical research studies, both at home and abroad, along with prominent legal cases were now in the general public’s limelight. Discussions began to focus on informed consent and the patient’s right to accept, refuse, or withdraw medical treatment recommendations. In 1967, attorney Luis Kutner, who represented the Euthanasia Society of America, first introduced the concept of a living will and suggested people should document their preferences for medical treatment similar to a last will and testament. The Euthanasia Society developed the first living will format with simple wording expressing the preference to be allowed to die without heroic measures when there is no reasonable expectation for recovery. Unfortunately, these first forms were a request and not a legal document.
Three women and the right to choose
Karen Quinlan
1954 - 1985
10-year battle
In 1975, the family of Karen Ann Quinlan, a 21-year-old patient in a persistent vegetative state (PVS), filed the first legal challenge for autonomous choice and the right-to-die. The next year, the New Jersey Supreme Court ruled in favor of the family allowing Karen’s father to follow her wishes and remove the ventilator. As a result of this case and the public interest, California passed the Natural Death Act in 1976 giving legal status to living wills. Other states began to follow, and today, every state has some form of advance directive or comprehensive legislation to document a person’s autonomous decisions for end-of-life care.
Nancy Cruzan
1957 - 1990
14-year battle
In 1983, Nancy Cruzan, 24 years old, suffered an anoxic brain injury as a result of a car accident leaving her in a persistent vegetative state in a state-run, long-term care facility. This case was a legal challenge regarding the standard of evidence required of surrogates to make right-to-die decisions for those who are no longer able to verbalize their own wishes or do not have documented wishes. The Missouri Supreme Court felt, in the case of incompetent patients, surrogates must prove a standard of evidence higher than a simple preponderance and required a “clear and convincing” standard. Using the Due Process clause in the Fourteenth Amendment, the 1990 U.S. Supreme Court agreed.
Terri Schiavo
1963 - 2005
15-year battle
In 1990, Terri Schiavo, a 26-year-old, went into cardiac arrest and was resuscitated, but she suffered severe brain damage due to a lack of oxygen. Eight years later, her husband petitioned the court to have her feeding tube removed based on what he said were her wishes. Her parents disagreed and took him to court. This case involved numerous medical and professional officials up to and including the state governor and his brother, the President of the United States. After numerous legal motions and 14 appeals, the federal court system agreed with the husband. Terri died less than 2 weeks later.